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Thursday - June 22nd 2023 I managed to sleep in my bed last night.  I elevated my legs to try and bring down the swelling in my foot.  Little jolts of pain kept me awake until 4AM.  I move around when I sleep which plays havoc on my knees and boom, I am up. Lots to do today.  My friend Diana is coming over to  help with work.  Thank goodness!  My whole family loves anytime she is here. Trying to answer emails from upset customers that I did not write back in a few hours to answer their questions.  I want to say I was running a fever and could not think but I do not think that would fly.  No one wants the truth especially if it makes them look bad.  So apologies all around and now to handle the grave doll emergencies for the day.  99% off the folks are wonderful but that last 1% can be pure torture. Had a bowl of Cheerios with no fat milk and watered down OJ for breakfast.  I really want a Snapple.  Ugh!!!

And It Begins

 6/21/2023 - WEDNESDAY Today has not been one of the worst days of my life, probably not even in the top thousand.  But today I started thinking about how much longer I can do this.  Wake up and not know if I could walk, think or basically function.  A day stuck in bed, unable to move, tears falling off my old face.  Maybe it would be a good day.  A day I knew I had to check off a long to do list.  The list piles up when you are out for a week. So I spoke with my friend Doug about the idea of disability.  I never wanted to be a burden on anyone or society.  When this illness started over thirty years ago I pivoted careers into one that would accommodate my illness at any moment - retail! But I could not pivot on life.  Being unable to attend a simple lunch with friends or a life event like their wedding.  And when I did make it they had no idea how difficult it was for me.  I never wanted anyone to know.   Covid was a...